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腦性麻痺孩童父母親生活品質、親職壓力及其相關因素之研究 = Qualit...

吳姵錡

腦性麻痺孩童父母親生活品質、親職壓力及其相關因素之研究 = Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy

紀錄類型:	書目-語言資料,印刷品 : 單行本
並列題名:	Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy
作者:	吳姵錡,
其他團體作者:	國立高雄大學
出版地:	[高雄市]
出版者:	撰者;
出版年:	民99[2010]
面頁冊數:	135面圖，表 : 30公分;
標題:	腦性麻痺
標題:	cerebral palsy
電子資源:	http://handle.ncl.edu.tw/11296/ndltd/70181374192276412888
摘要註:	為瞭解父母親在照顧腦性麻痺孩童的生活品質與親職壓力，關心孩子也同時關心家長，目前國內文獻，從父母親角度探討有關照顧腦性麻痺孩童時的生活品質仍屬少數，依世界衛生組織公布的國際健康功能與身心障礙分類系統理論，透過孩童的特質，廣泛瞭解父母親的需求，找出對腦性麻痺孩童及其父母親最適宜的健康促進方式，進而提升腦性麻痺孩童家庭的生活品質。方法：本研究採病例對照設計，使用結構式問卷針對研究對象進行資料收集。以腦性麻痺孩童的父母親為研究對象，選取147位個案參與研究；再以與實驗組人口學相似條件，選取143位一般健康兒童父母親為對照組，並比較孩童不同粗大動作功能分類系統階級之父母親的生活品質與親職壓力。問卷內容包括：一、腦性麻痺孩童及父母親之基本屬性資料；二、腦性麻痺孩童障礙嚴重程度、相關疾病及復健醫療；三、父母親尋求相關支持系統；四、生活品質量表；五、親職壓力量表。結果：腦性麻痺孩童父母親的生活品質量表及親職壓力量表，在各範疇及整體生活品質、親職壓力皆明顯較一般兒童父母親差，且腦性麻痺孩童父母生活品質與親職壓力有顯著的高度負相關( r =-0.71)，當親職壓力越高時，其生活品質就越低；本研究同時以不同的粗大動作能力來比較腦性麻痺孩童父母親的生活品質與親職壓力，發現孩童不同的粗大動作階級，只在階級一和階級五的比較有統計上差異，即粗大動作能力越好，生活品質好，且親職壓力也較低。父母親因照顧腦性麻痺孩童而產生的的身體疼痛以腰酸最多(82.9%)，依次為肩膀酸痛(61.5%)及手腕拉傷(24.8%)；且身體疼痛的產生與『整體生活品質』呈現負相關( r =-0.26)，『整體親職壓力』呈現正相關( r =0.26)。另外照顧者的最重要支持來源為配偶，其次依序為其他家人及治療師。對腦性麻痺孩童父母親的生活品質及親職壓力最具預測力的變項包括：粗大動作能力、自覺生活品質、自覺健康狀態、就業及每月家庭平均收入。結論：讓父母親瞭解影響生活品質及親職壓力的因素，如瞭解孩童有限的能力以提供孩童階段性的復健計畫，家庭的經濟收入更是能持續性維持整體的生活品質，並降低親職壓力的重要因素。並建議父母親善用輔具資源，保護自己降低因照顧孩童而引發的身體疼痛。 This study investigated quality of life (QOL), parental stress and related factors in parents with children suffering from cerebral palsy (PCCPs) and attempted to assess their relationship with regard to the severity of a child’s motor disability. Using a case-control study design, data were collected primarily through the use of survey questionnaires. In total, 147 PCCPs as well as 143 parents of healthy children participated in the study. Demographic data including children’s age, sex and the parents’ age, sex, residence and education were also compared with those of the study group. Measurement instruments for the study included the Quality of Life Scale (WHOQOL-BREF), Parental Stress Scales (PSI/SF). Also, Gross Motor Function Classification System (GMFCS) was used for the children with cerebral palsy. The basic information of the children and parents focused upon: severity of motor disability, related diseases, rehabilitation, and frequency of parents asking for related support system. The data were analyzed with the SPSS 14.0Windows statistical package. The results of the study indicated significantly worsened QOL and parental stress was more likely to be observed in PCCPs than in comparisons to the parents of healthy children. Specifically, a negative correlation between QOL and parental stress was noted in PCCPs. Also, QOL and parental stress were significantly correlated with the severity of a child’s motor disability. They were also reported physical problems, including tenderness over lower back, upper back and wrist sprain. The PCCPs’ important supporter is spouse, other families and therapists. The predictor of QOL and parental stress is the severity of a child’s motor disability, overall QOL, general health and household income. The QOL and parental stress of parents of children is different from those who have a healthy child. Different coping strategies and psychosocial programs must be designed and implemented to decrease the burden of care. Health professionals have a role to assist families with information needs to prepare for key periods in the lives of their children with children.

腦性麻痺孩童父母親生活品質、親職壓力及其相關因素之研究 = Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy
吳, 姵錡

腦性麻痺孩童父母親生活品質、親職壓力及其相關因素之研究 = Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy / 吳姵錡撰 - [高雄市] : 撰者, 民99[2010]. - 135面 ; 圖，表 ; 30公分.
參考書目：面.
腦性麻痺cerebral palsy

腦性麻痺孩童父母親生活品質、親職壓力及其相關因素之研究 = Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy
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